As Lincoln's health history gets longer and longer I feel like I need to try and document it as best I can, incase I need to refer back to details.
Unfortunately our baby Linc is back in the hospital, and will probably be here all weekend. On Thursday during his feeding therapy he started having desats (decreased oxygen saturation, where he holds his breath and stops breathing for a second or so), also called apnea. What the heck! So, they put him on a monitor, where they watched his oxygen levels in his blood and saw him do it enough that it was concerning to them. We were admitted to the ER on Thursday night, where they placed a smaller feeding tube in, hoping to decrease the obstruction to his airway. Fortunately that has helped tremendously!! For the first time in weeks he is not congested and his breathing is clear! Thank goodness. Why they did not just put a smaller tube in, in the first place I do NOT know!!! On Thursday night he had multiple apnea episodes so they switched his sleeping position to his tummy and so far that seems to be working well for him. He is in a funny thing called a 'tucker sling' where he is on the wedge, on his stomach, and then the sling holds him in, kind of like a diaper, so that he doesn't slip down to the bottom of the wedge (see pic below).
He also got an MRI done yesterday, which was pretty disturbing to watch as a mother. His tiny body laying in that huge MRI machine just didn't sit right. He was so good and cooperated through the whole thing- thank goodness they did NOT have to put him under general. They just strapped him in and put ear plugs in his ears. He went right to sleep and slept through the entire procedure. The radiologist asked me if I wanted to wait in the waiting room or stay in the room with Lincoln. Uh- I think I'll stay with my baby! I just sat in the room and cried, as the loud banging and clanking of the MRI machine went on and off. Unfortunately the only way to confirm placement of an ND feeding tube is to have an x-ray done, so he has had about five of those in the past two days, trying to get the placement right. Lincoln hates it when we have to stretch his tiny body out to take a picture. It's still not in the right place. Today we will meet with the neurodevelopmental specialist and go over the MRI in more details. We love our Lincoln and feel so proud of him for being a fighter!
Unfortunately our baby Linc is back in the hospital, and will probably be here all weekend. On Thursday during his feeding therapy he started having desats (decreased oxygen saturation, where he holds his breath and stops breathing for a second or so), also called apnea. What the heck! So, they put him on a monitor, where they watched his oxygen levels in his blood and saw him do it enough that it was concerning to them. We were admitted to the ER on Thursday night, where they placed a smaller feeding tube in, hoping to decrease the obstruction to his airway. Fortunately that has helped tremendously!! For the first time in weeks he is not congested and his breathing is clear! Thank goodness. Why they did not just put a smaller tube in, in the first place I do NOT know!!! On Thursday night he had multiple apnea episodes so they switched his sleeping position to his tummy and so far that seems to be working well for him. He is in a funny thing called a 'tucker sling' where he is on the wedge, on his stomach, and then the sling holds him in, kind of like a diaper, so that he doesn't slip down to the bottom of the wedge (see pic below).He also got an MRI done yesterday, which was pretty disturbing to watch as a mother. His tiny body laying in that huge MRI machine just didn't sit right. He was so good and cooperated through the whole thing- thank goodness they did NOT have to put him under general. They just strapped him in and put ear plugs in his ears. He went right to sleep and slept through the entire procedure. The radiologist asked me if I wanted to wait in the waiting room or stay in the room with Lincoln. Uh- I think I'll stay with my baby! I just sat in the room and cried, as the loud banging and clanking of the MRI machine went on and off. Unfortunately the only way to confirm placement of an ND feeding tube is to have an x-ray done, so he has had about five of those in the past two days, trying to get the placement right. Lincoln hates it when we have to stretch his tiny body out to take a picture. It's still not in the right place. Today we will meet with the neurodevelopmental specialist and go over the MRI in more details. We love our Lincoln and feel so proud of him for being a fighter!
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