Saturday, June 23, 2012

Questions

When people say, "they don't know what to say" I always tell them it's better to say SOMETHING (even if it's "I don't know what to say") then to say NOTHING at all.  I also have found that since there really isn't anything anyone can say to help us feel better, I enjoy when people ask questions.  It shows they care without stumbling on words of advice or suggestions that really are not helpful at all.  So, I thought I'd answer some of the great questions that I've been asked lately, incase anyone is wondering....

*Lincoln's name is not up on his plaque at the cemetery yet.  It could take up to 6 months!!  It's ridiculous really.

*Of course anyone is more then welcome to go and visit his grave at the cemetery.  I'm always more then happy to describe how to find it, although it may be easier to find when his name is there.  However, in the mean time, just follow the pinwheels!  You'll know where he is.

*Lincoln's final death report was recently issued by the medical examiner.  They never found any cause of his death, and therefore on that report it states, "unknown cause of death to an infant."  SIDS is only given for those children younger then one year of age.  So, Linc was too old for that diagnosis.

*We haven't touched Lincoln's room.  It's the exact same way it was when he left us.  For now we like it that way.  We all spend a lot of time in his room and feel at peace when we are in there.  He has a great rocking chair in his room where I will often sit and snuggle with Jezelle, or just sit by myself and rock, holding his little giraffe lovey while praying that I can feel him close by.  I think it's a place where we all feel close to him and at peace.  I sometimes walk by Lincoln's room and Jezelle is just sitting there rocking in the chair, looking out the window and holding his lovey.  Ohhh how she misses him.

*I was recently asked (by my sweet sister-in-law who is always so thoughtful) what I miss most, aside from the obvious of missing Lincoln himself.  And as strange as it sounds, I miss being a mom to a child with special needs.  I miss the special needs community we were part of and the incredible families and teachers we were blessed to have known.  I miss Lincoln's therapists, I miss watching Lincoln at therapy, and taking him to therapy.  I miss our drives to therapy, which at least once a week were about 30-40 min. away.  I miss seeing him in my rear view mirror.  I miss Jezelle having a sibling.  And I miss who we were before he died.  Because regardless of how we look at it we are changed.  We are all different.

4 comments:

  1. I'm praying for you and your family.

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  2. Oh I know just how you feel... I'm thinking of you with love as you miss your sweet boy and everything that came with him... xo!

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  3. I guess I am one of the ones guilty of not saying enough. My heart still aches as I am sure it always will. Your words are always beautiful Joie and you definitely know what to say. I can not imagine the emptiness you feel every time you get in the car to go somewhere or walk by his bedroom. I loved rocking him in that chair. We will never forget his sweet spirit.

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  4. Keep that room the same just as long as you want. It was so hard to finally leave my apartment in SLC the morning I moved because that was the last place my Dad was. I could always feel him close by I his room. I hope you feel that way everytime you're in Linc's room! Love you all

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